European WONCA Conference for GP Family Practices
We were delighted to attend the European WONCA Conference at the Dublin Convention Centre at the end of September, where we met lots of GPs and family doctors practicising in Ireland and all over Europe, who are passionate about haemochromatosis and helping patients. Thank you to our great volunteers as always, Brendan and Anna!
New Treasurer & Board Member, Luke Mitchell
We are delighted to welcome Luke Mitchell as our new Treasurer and Board Member. Luke brings a wealth of financial and business expertise to his new position on our board, having worked with leading companies like Bank of Ireland, Deloitte, PayPal and Optum. Thank you Luke for volunteering with the Association!
L.I.F.E. Campaign for Haemochromatosis
Our 2024 education and awareness campaign was launched in April and the campaign’s fun and
engaging approach has successfully informed the public about haemochromatosis, how to recognise
the symptoms, how to get tested and treated and how to manage haemochromatosis. We continue to receive very positive feedback from our members, the public and the medical and health sector.
World Haemochromatosis Awareness Week 2023
World Haemochromatosis Awareness Week 2023 was a great success this year, thanks to all our members, the public, the media, volunteers and nurses around the country who shared their stories of haemochromatosis, promoted the week on radio, print or social media or to everyone who set up an information stand in their workplace or shopping […]
Caroline Martin tells her story during World Haemochromatosis Awareness Week
Caroline Martin talks about her story and her haemochromatosis journey with the Irish Daily Star, Chic magazine for World Haemochromatosis Awareness Week 2023. ‘Symptoms are often ones that are common with other medical conditions, so that is why it is so important to get tested for haemochromatosis.’ Caroline is passionate about raising awareness of haemochromatosis […]
Oireachtas Briefing on Haemochromatosis
A national strategy for haemochromatosis was big on the agenda in Leinster House during May. Thank you to all the TDs and Senators who attended our briefing and submitted parliamentary questions
Patient Information Event in Galway
We were delighted to meet everyone in-person and see people so engaged and asking lots of questions at our Galway Patient Information event at the Galway Bay Hotel in May 2023! Huge thanks to Dr. Brian Osborne, who gave a wonderful presentation. Thank you also to Dr Diarmuid Quinlan, Medical Director, Irish College of GPs. […]
Corporate Partnerships – Nominate us
Does your company have Charity of the Year partnerships? If you would like to nominate the Irish Haemochromatosis Association for a Charity of the Year Partnership please get in touch!
Who we are & our board
Executive Director – Miriam Forde Miriam is responsible for the operational management and along with the board, for the strategic direction of the Irish Haemochromatosis Association. Miriam’s role is to devise and implement campaigns to increase awareness, provide support and information resources for members and the general public, manage communications and develop partnerships with health […]
Governance & GDPR
Governance Structure The Irish Haemochromatosis Association is dedicated to ensuring a sound governance structure provides the basis from which we operate, in line with our core values. The IHA is a registered charity and a company limited by guarantee. It is governed by our Memorandum and Articles of Association and the Companies Act 2014. The […]