New GP Practice Nurse Venesection Training & Education Programme

We are delighted to receive a recent Hospital Saturday Fund grant to facilitate GP venesection nurse training and education for GP Practice Nurses in Ireland. As part of our funding, we partnered with the Education and Training Programme team in Sligo, Leitrim, Roscommon and Donegal to develop a competency-based curriculum to manage venesection treatment for patients.

Our aim is for this curriculum which has been approved by NMBI, to be replicated across the country. We would like to extend a sincere thanks to the wonderful education team in the NW region, including Mairead Murphy, Kathy Taffe, Charlotte Hannon, Teresa Donnelly, Lynn Stoddart, Emma Ball and venesection nurses Akhtar Arif and Margaret Dobbin for their expertise in developing this programme. Their dedication is a true example of integrated and collaborative working to improve patient care.

For more information on this initiative, you can read two of the latest articles from SAOLTA and the Independent here:

https://www.saolta.ie/news/hse-west-and-north-west-rolls-out-hereditary-haemochromatosis-hh-education-programme-gp

https://www.independent.ie/regionals/sligo/news/new-hse-programme-for-gps-is-taking-haemochromatosis-care-in-the-north-west-out-of-hospital-settings/a1762076385.html

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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