Launch of HUK Report in Stormont: ‘Economic impactof Screening for HH in NI’

Haemochromatosis UK launched their latest report at the NI Assembly in Stormont, Belfast, which evaluates the economic costs and benefits of screening for genetic haemochromatosis in Northern
Ireland. David Beggy and Miriam Forde, Irish Haemochromatosis Association attended the event, where HUK, CEO, Neil McClements welcomed Health Minister Mike Nesbitt and Dr Steve Aiken (Deputy Assembly Speaker) and almost a hundred guests from the GH community, policymakers, clinicians and officials from the Department of Health NI.

You can read a full copy of the report here: www.haemochromatosis.org.uk/ni-screening

The report reveals that there is a clear economic case for routine population-based genetic haemochromatosis screening in Northern Ireland under a range of assumptions for the prevalence of
haemochromatosis.

  • Screening saves lives, saves money
  • For every £1 spent on screening, over £3 of benefit is generated
  • The case for screening is strongest for people in their 40s – both men and women
  • Over the past 3 years, Haemochromatosis UK has been running cross-community screening programmes across Northern Ireland (and in other areas of high prevalence across the UK).

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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