You can keep up-to-date with our work and our news and events, by joining us as a member of the Irish Haemochromatosis Association and by signing up to our enewsletter. We are passionate about spreading awareness of haemochromatosis – help us to educate and promote more awareness of Ireland’s most common genetic disorder.

News and Events

AGM 24th May 2025: Guest Speaker, Professor Frank Murray

Our AGM takes place this year on Saturday 24th May 2025. There will be an option to attend in-person at the IBTS building in St. James’s Hospital, James Street, Dublin or online via webinar. Teas and coffees will be available from 10.30am and the business of the AGM will start at 11am.

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New GP Practice Nurse Venesection Training & Education Programme

New GP venesection nurse training and education progamme for GP Practice Nurses in Ireland. As part of our funding from the Hospital Saturday Fund, we partnered with the Education and Training Programme team in Sligo, Leitrim, Roscommon and Donegal to develop a competency-based curriculum to manage venesection treatment for patients.

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Men’s Health Week 2025

The Irish Haemochromatosis Association is now a member of the Men’s Health Forum and part of the Planning Committee for Men’s Health Week 9-15th June. Our aim is to encourage and promote positive men’s health on the island of Ireland. The theme this year is ‘shoulder-to-shoulder’ to show that men of all ages are unified, strong, resolute, supportive and connected.

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World Haemochromatosis Awareness Week 1-7th June 2025

World Haemochromatosis Awareness Week will take place from 1-7th June 2025. If you can help in any way, organise an information stand, or do an interview on local radio, we need your help! If you have new media contacts or if you know of entertainment or sports personalities who can endorse our campaign, please get in touch.

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