News and Events

Damian Boylan is Cork’s New Lord Mayor
We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

‘We are Family’ HUK Haemochromatosis Event Belfast
Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield.

World Haemochromatosis Awareness Week, 1-7th June 2026
World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

Dublin hosted the EIC, European Iron Conference in June 2026
Dublin hosted the European Iron Club Conference in the Business School venue in Trinity College Dublin from the 18th to the 20th June. The event was organised by Professor Suzanne Cloonan, Trinity College and Professor John Ryan, RCSI.

Anna McCarthy Swims the Strait of Gibraltar for Haemochromatosis Awareness
Huge shout out to Anna McCarthy, friend, member and ambassador for the Irish Haemochromatosis Association, who swam the Strait of Gibraltar, Spain to Morocco – breaking another record!!

Irish GP Practice Nurses Education Association Annual Conference 2026
The IGPNEA Conference 2026 takes place in Mullingar at the Mullingar Park Hotel on Friday 9th and Saturday 10th October. There will be practical training sessions for nurses who have signed up with the IGPNEA for venesection training – these places are limited and also involve a theory training session in advance of the practical training.
You can keep up-to-date with our work and our news and events, by joining us as a member of the Irish Haemochromatosis Association and by signing up to our enewsletter. We are passionate about spreading awareness of haemochromatosis – help us to educate and promote more awareness of Ireland’s most common genetic disorder.
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