You can keep up-to-date with our work and our news and events, by joining us as a member of the Irish Haemochromatosis Association and by signing up to our enewsletter. We are passionate about spreading awareness of haemochromatosis – help us to educate and promote more awareness of Ireland’s most common genetic disorder.
News and Events
Volunteer Treasurer Needed
We are looking for a Volunteer Treasurer with an interest or a personal connection to haemochromatosis and who is interested in raising more awareness of Ireland’s most common genetic disorder. We are seeking individuals with skills and experience in finance, accountancy, book-keeping.
Irish PR Awards
We are so proud to have been shortlisted for the Irish PR Awards in ‘Best Healthcare Campaign’ for our campaign work on World Haemochromatosis Awareness Week in 2023. Sincere thanks to all the team at Harris PR
Thank you to everyone who made World Haemochromatosis Awareness Week a huge success!
We officially launched World Haemochromatosis Awareness Week in Phoenix Park in Dublin this week. Thank you to David Beggy, Margaret Mullett, Jessica Byrne, Ruby Harris-Pope and Sam Crowley for raising more awareness of Ireland’s most common genetic disorder
Diet & Haemochromatosis Webinar
Join us for our upcoming Diet & Haemochromatosis webinar with Sarah Keogh, leading Dietician and Nutritionist www.eatwell.ie on Wednesday 19th June at 7pm. There will be lots of opportunities for questions too. We look forward to seeing you then. Register via zoom link today!
World Haemochromatosis Awareness Week 2024
World Haemochromatosis Awareness Week takes place from this Saturday, 1st June to the 7th June 2024. Our mision is to promote early diagnosis of haemochromatosis. 1 in 5 of us are carriers of the gene and 1 in 83 people in Ireland are predisposed to develop haemochromatosis.
Nominate us to win in AIB Community Fund
Nominate us to win up to €28,000 in AIB’s Community Fund this year. Every vote will count towards helping us continue to support haemochromatosis patients and their families in Ireland. The deadline is the 12th June. Thank you!
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