World Haemochromatosis Awareness Week will take place from 1-7th June 2025. If you can help in any way, organise an information stand, or do an interview on local radio, we need your help! If you have new media contacts or if you know of entertainment or sports personalities who can endorse our campaign, please get in touch and send us an email: [email protected]
Every year, we continue to promote early diagnosis of haemochromatosis and raise awareness of Ireland’s most common genetic disorder. Watch out for public buildings and monuments lit up red to highlight the campaign or if you know of a civic or public building near you, let us know if they can light it up red to mark World Haemochromatosis Awareness Week and spread more awareness of haemochromatosis throughout Ireland. Please send us your ideas for promotion or to help during this important week. Email [email protected]
Some photos of our Light Up Red campaign last year, as part of World Haemochromatosis Awareness Week 2024!
Our AGM takes place this year on Saturday 24th May 2025. There will be an option to attend in-person at the IBTS building in St. James’s Hospital, James Street, Dublin or online via webinar. Teas and coffees will be available from 10.30am and the business of the AGM will start at 11am.
Join us and Dr. Michelle Murphy, a Psychotherapist and lecturer in health and social care specialist and therapist. Her research has contributed to developing community and mental health services. Michelle offers practical, evidence-based brain health tips for everyday life.
New GP venesection nurse training and education progamme for GP Practice Nurses in Ireland. As part of our funding from the Hospital Saturday Fund, we partnered with the Education and Training Programme team in Sligo, Leitrim, Roscommon and Donegal to develop a competency-based curriculum to manage venesection treatment for patients.
