Sunday 1st June was the first day of World Haemochromatosis Awareness Week – and the official start of summer! Thank you to everyone for helping us spread the word and a special thank you to all our members and volunteers who did interviews on local and regional radio, talking about their own journeys through haemochromatosis – which is such a good way to promote awareness around early diagnosis and treatment.
You can find a link to just some of the radio interviews/podcasts here:
📻Kerry Radio, interview with Raphael Crowley on Talkabout, Deirdre Walsh’s Show: https://www.radiokerry.ie/podcasts/talkabout/world-haemochromatosis-day-438240
📻 Mid West Radio, interview with Luke Mitchell on The Tommy Marren Show – you can start listening at 41.12 on the time bar here: Mid West Radio Luke Mitchell audio IV
📻 C103 interview with Martin Forrest with Patricia Messenger: http://bit.ly/442awgb
📻 Thank you also to Denise McAuliffe, Philip Maree, Brian Coyle, Brian Keegan, Martin Forrest, Maire Jackman, Anna McCarthy and all our other volunteers and members who did radio interviews and bulletins for Limerick Live, Phoenix FM, Highland Radio, Castlebar Radio, 96FM and Radio na Life!
Haemochromatosis is Ireland’s most common genetic disorder and we have the highest rates of iron overload in the world.
Symptoms of haemochromatosis can range from chronic tiredness and joint pain to abdominal pain, irregular heartbeat and liver problems.
Early diagnosis is crucial in ensuring effective management on the condition and preventing serious complications if left untreated, such as organ damage or even premature death.
If you or anyone you know is experiencing symptoms ‘Get Checked for Haemochromatosis’ by consulting your GP, to arrange an iron panel blood test
We continue to ask you to help us promote awareness around haemochromatosis:
Like and share our posts
Learn more through reading our information and resources and spreading the word!
Can you do an interview for us on local radio? Email [email protected] for more information
#ironoverload #TogetherWeAreStronger #haemochromatosis
A selection of some of the photos of our Light Up Red campaign below
World Haemochromatosis Awareness Week will take place from 1-7th June 2025. If you can help in any way, organise an information stand, or do an interview on local radio, we need your help! If you have new media contacts or if you know of entertainment or sports personalities who can endorse our campaign, please get in touch.
Our AGM takes place this year on Saturday 24th May 2025. There will be an option to attend in-person at the IBTS building in St. James’s Hospital, James Street, Dublin or online via webinar. Teas and coffees will be available from 10.30am and the business of the AGM will start at 11am.
Join us and Dr. Michelle Murphy, a Psychotherapist and lecturer in health and social care specialist and therapist. Her research has contributed to developing community and mental health services. Michelle offers practical, evidence-based brain health tips for everyday life.
