Help and Support for Patients with Haemochromatosis
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Support and Information for people affected by Haemochromatosis
Help & Support
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What is Haemochromatosis?

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How you can help

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Information & Resources

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News And Events

What is Haemochromatosis?

Haemochromatosis (or ‘iron overload’) is an inherited disorder which causes the body to absorb too much iron from the diet. The excess iron gradually accumulates, usually in the liver, pancreas, joints, heart or endocrine glands. 

Ireland has the highest rates of haemochromatosis in the world, where approximately 1 in 83 people are at risk of developing haemochromatosis and 1 in 5 are carrriers of the gene.

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Symptoms

Iron builds up slowly so symptoms may not appear until age 30 or 40. Symptoms can include, but are not limited to chronic fatigue, joint pain, abdominal pain, diabetes

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Treatment

The treatment of choice and the most effective strategy for the management of Haemochromatosis is Venesection (Phlebotomy), which means the removal of blood

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Testing

An iron panel blood test can confirm or rule out iron overload. If both serum ferritin (SF) and transferrin saturation (TS) levels are raised, then a genetic test should be carried out

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Information

Links to patient information guides, diet and haemochromatosis, research and managing haemochromatosis for patients, GPs and nursing professionals

About Us

Need Support?

Get in touch via our helpline or email on our contact us page, our team is always ready to advise and support

Donate

We welcome all donations, which will help patients and their families and provide vital information and support services

News and Events

Our members and supporters give us a collective voice to help promote awareness of haemochromatosis in Ireland and internationally. We are passionate about promoting early awareness of haemochromatosis.

You can keep up-to-date with our work and our news and events, by signing up for membership of the Irish Haemochromatosis Association or by making a donation to help us advocate for people and families with haemochromatosis. 

Diet & Haemochromatosis Webinar

Join us for our upcoming Diet & Haemochromatosis webinar with Sarah Keogh, leading Dietician and Nutritionist www.eatwell.ie on Wednesday 19th June at 7pm. There will be lots of opportunities for questions too. We look forward to seeing you then. Register via zoom link today!

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Launch of World Haemochromatosis Awareness Week!

We officially launched World Haemochromatosis Awareness Week in Phoenix Park in Dublin this week. Thank you to David Beggy, Margaret Mullett, Jessica Byrne, Ruby Harris-Pope and Sam Crowley for raising more awareness of Ireland’s most common genetic disorder

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World Haemochromatosis Awareness Week 2024

World Haemochromatosis Awareness Week takes place from this Saturday, 1st June to the 7th June 2024. Our mision is to promote early diagnosis of haemochromatosis. 1 in 5 of us are carriers of the gene and 1 in 83 people in Ireland are predisposed to develop haemochromatosis.

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