Help and Support for Patients with Haemochromatosis
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Support and Information for people affected by Haemochromatosis
Help & Support
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What is Haemochromatosis?

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How you can help

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Information & Resources

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News And Events

What is Haemochromatosis?

Haemochromatosis (or ‘iron overload’) is an inherited disorder which causes the body to absorb too much iron from the diet. The excess iron gradually accumulates, usually in the liver, pancreas, joints, heart or endocrine glands. 

Ireland has the highest rates of haemochromatosis in the world, where approximately 1 in 83 people are at risk of developing haemochromatosis and 1 in 5 are carrriers of the gene.

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Symptoms

Iron builds up slowly so symptoms may not appear until age 30 or 40. Symptoms can include, but are not limited to chronic fatigue, joint pain, abdominal pain, diabetes

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Treatment

The treatment of choice and the most effective strategy for the management of Haemochromatosis is Venesection (Phlebotomy), which means the removal of blood

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Testing

An iron panel blood test can confirm or rule out iron overload. If both serum ferritin (SF) and transferrin saturation (TS) levels are raised, then a genetic test should be carried out

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Information

Links to patient information guides, diet and haemochromatosis, research and managing haemochromatosis for patients, GPs and nursing professionals

About Us

Need Support?

Get in touch via our helpline or email on our contact us page, our team is always ready to advise and support

Donate

We welcome all donations, which will help patients and their families and provide vital information and support services

News and Events

Our members and supporters give us a collective voice to help promote awareness of haemochromatosis in Ireland and internationally. We are passionate about promoting early awareness of haemochromatosis.

You can keep up-to-date with our work and our news and events, by signing up for membership of the Irish Haemochromatosis Association or by making a donation to help us advocate for people and families with haemochromatosis. 

‘Putting your best arm forward’

‘Putting your best arm forward’, Siobhan Cronin, Editor, The Southern Star newspaper talks about how important awareness is of Ireland’s most common genetic disorder and talks us through her haemochromatosis journey.

Read More »

Christmas Jumper Cheer!

There is still time to donate to our Christmas Jumper Campaign this year! Miriam is raising funds to support our ongoing work and projects, including our Helpline, information resources and vital research work.

Read More »

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