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For Healthcare Professionals
Information for Healthcare Professionals
On this page you can find our extensive library links to research information, studies, guides and more. On this page you can find our extensive library links to research information, studies, guides and more. On this page you can find our extensive library links to research information, studies, guides and more. On this page you can find our extensive library links to research information, studies, guides and more
For GPs & Consultants
We have a number of guides for GPs, links to which you can find below. You can also view our information videos here. You can also access information on common symptoms, diagnosis, treatment and management of the condition by reading our articles about haemochromatosis:
- Hereditary Haemochromatosis – Diagnosis & Management from a GP Perspective
- What is Haemochromatosis?
- Haemochromatosis: Are we pumping too much iron (Irish Pharmacy Union interview)
- Therapeutic Phlebotomy for Patients with HH
- Haemochromatosis and Venesection Guide Adelaide & Meath Hospital
- Irish Blood Transfusion Service Guidelines 2023
- Journal of Nursing & Healthcare. Learning to live with Hereditary Haemochromatosis. A Qualitative Descriptive Study
- Osteoporosis & Genetic Haemochromatosis Advice for Patients (HARI)
- Treatment of Haemochromatosis: Arthropathy Advice for Patients (HARI)
- The Nursing Care of the Haemochromatosis Patient
- Diet & Haemochromatosis booklet
For Nurses
We have a number of guides available for nurses in general practice and in hospital settings, links to which you can find below. You can also view our informational videos here. You can also access information on common symptoms, diagnosis, treatment and management of the condition in our ‘About Haemochromatosis’ articles which can be found under “Haemochromatosis” in our navigation menu
- What is haemochromatosis?
- Haemochromatosis: Are we pumping too much iron (Irish Pharmacy Union interview)
- Therapeutic Phlebotomy for Patients with Hereditary Haemochromatosis
- Haemochromatosis and Venesection Guide Adelaide & Meath Hospital
- Irish Blood Transfusion Service Guidelines 2023
- Journal of Nursing & Healthcare. Learning to live with Hereditary Haemochromatosis. A Qualitative Descriptive Study
- Osteoporosis & Genetic Haemochromatosis Advice for Patients (HARI)
- Treatment of Haemochromatosis: Arthropathy Advice for Patients (HARI)
- The Nursing Care of a Haemochromatosis Patient
Journal Articles and Research for GPs and Consultants
EASL (European Association for the Study of the Liver) Clinical Practice Guidelines on Haemochromatosis. Panel members: Annick Vanclooster, Bill Griffiths, Edouard Bardou-Jacquet, Elena Corradini, Graça Porto, John Ryan, EASL GB representative: Markus Cornberg
https://www.journal-of-hepatology.eu/action/showPdf?pii=S0168-8278%2822%2900211-2
Systematic Review of the Clinical Outcomes of Iron Reduction in Hereditary Hemochromatosis. Prabhu A, Cargill T, Roberts N, Ryan JD
Hemochromatosis. John K. Olynyk, M.D., and Grant A. Ramm, Ph.D.
https://www.nejm.org/doi/full/10.1056/NEJMra2119758
Population Screening for Hereditary Haemochromatosis in Australia: Construction and Validation of a State-Transition Cost-Effectiveness Model. Barbara de Graaff, Lei Si, Amanda L Neil, Kwang Chien Yee, Kristy Sanderson, Lyle C Gurrin, Andrew J Palmer
file:///C:/Users/miria/Desktop/Population%20Screening%20for%20Hereditary%20Haemochromatosis%20in%20Australia%202016%20Barbara%20de%20Graaf%20etc%20al.pdf
Association of Hemochromatosis HFE p.C282Y Homozygosity With Hepatic Malignancy. Janice L Atkins, Luke C Pilling, Jane A H Masoli, Chia-Ling Kuo, Jeremy D Shearman, Paul C Adams, David Melzer
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7686863/
Common conditions associated with hereditary haemochromatosis genetic variants: cohort study in UK Biobank. Pilling LC, Tamosauskaite J, Jones G, Wood AR, Jones L, Kuo CL, Kuchel GA, Ferrucci L, Melzer D