New GP Practice Nurse Venesection Training & Education Programme
New GP venesection nurse training and education progamme for GP Practice Nurses in Ireland. As part of our funding from the Hospital Saturday Fund, we partnered with the Education and Training Programme team in Sligo, Leitrim, Roscommon and Donegal to develop a competency-based curriculum to manage venesection treatment for patients.
Launch of HUK Report in Stormont: ‘Economic impactof Screening for HH in NI’
Haemochromatosis UK launched their latest report at the NI Assembly in Stormont, Belfast, which evaluates the economic costs and benefits of screening for genetic haemochromatosis in Northern
Ireland.
European Iron Conference & EFAPH AGM, Innsbruck
The EIC European Iron Conference and the EFAPH (European Federation for Associations of Patients with Haemochromatosis) AGM will take place in Innsbruck, Austria from the 4th – 6th December, where the Irish Haemochromatosis Association will be representing our members and patients.
BloodHIT Conference & Our work with the IBTS
The Irish Haemochromatosis Association attended BlooDHIT (the Irish Blood Transfusion Service bi-annual Conference on Blood Donation, Haematology Infection and Transfusion), where we were given opportunities to learn from national and international research and experts.
Winner of the Irish Healthcare Award for Best Public Health Initiative of the Year
We won! For championing awareness of haemochromatosis in Ireland, the Irish Haemochromatosis Association was the proud winner at the end of 2024, of the Irish Healthcare Awards Public Health Initiative of the Year for our education and awareness L.I.F.E campaign. Every year the Irish Healthcare Awards recognise innovation and excellence across the healthcare sector.
European WONCA Conference for GP Family Practices
We were delighted to attend the European WONCA Conference at the Dublin Convention Centre at the end of September, where we met lots of GPs and family doctors practicising in Ireland and all over Europe, who are passionate about haemochromatosis and helping patients. Thank you to our great volunteers as always, Brendan and Anna!
New Treasurer & Board Member, Luke Mitchell
We are delighted to welcome Luke Mitchell as our new Treasurer and Board Member. Luke brings a wealth of financial and business expertise to his new position on our board, having worked with leading companies like Bank of Ireland, Deloitte, PayPal and Optum. Thank you Luke for volunteering with the Association!
L.I.F.E. Campaign for Haemochromatosis
Our 2024 education and awareness campaign was launched in April and the campaign’s fun and
engaging approach has successfully informed the public about haemochromatosis, how to recognise
the symptoms, how to get tested and treated and how to manage haemochromatosis. We continue to receive very positive feedback from our members, the public and the medical and health sector.
World Haemochromatosis Awareness Week 2023
World Haemochromatosis Awareness Week 2023 was a great success this year, thanks to all our members, the public, the media, volunteers and nurses around the country who shared their stories of haemochromatosis, promoted the week on radio, print or social media or to everyone who set up an information stand in their workplace or shopping […]
Caroline Martin tells her story during World Haemochromatosis Awareness Week
Caroline Martin talks about her story and her haemochromatosis journey with the Irish Daily Star, Chic magazine for World Haemochromatosis Awareness Week 2023. ‘Symptoms are often ones that are common with other medical conditions, so that is why it is so important to get tested for haemochromatosis.’ Caroline is passionate about raising awareness of haemochromatosis […]