L.I.F.E. Campaign for Haemochromatosis

Our 2024 education and awareness campaign was launched in April and the campaign’s fun and
engaging approach has successfully informed the public about haemochromatosis, how to recognise
the symptoms, how to get tested and treated and how to manage haemochromatosis. We continue to receive very positive feedback from our members, the public and the medical and health sector on the campaign. Our information and educational messages are simple and easy to understand. Thanks to our collaboration with Harris PR, we have developed a monthly series of digital paid and organic posts across our charity social media platforms. Let us know what you think! If you would like to send us any feedback on the social media campaign, just email miriam@haemochromatosis.ie

We have delivered:

  • A multi-platform digital campaign (paid and organic) promoting a positive message of healthy living and wellness while educating about symptoms
  • A memorable acronym, LIFE, to encourage engagement and awareness – we have used a very simple graphic to encourage people to L (Learn the symptoms), I (Identify Needs), F (Find Support) and E (Enjoy Life!)
  • We also include monthly spotlights on key topics such as symptoms, diet, diagnosis, and living with haemochromatosis
  • For a sample set of visuals across our campaign which will be ongoing throughout 2024, please see our gallery below. Thank you to all our members, supporters and the public who are on social media and who continue to like, share and spread the word about haemochromatosis health!

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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