Oireachtas Briefing on Haemochromatosis

A national strategy for haemochromatosis was big on the agenda in Leinster House during May. Thank you to all the TDs and Senators who attended our briefing, in particular huge thanks to Senator Martin Conway, who hosted the event and Cllr Damian Boylan, who has long advocated for haemochromatosis, as Ireland’s most common genetic disorder, to be high on the health agenda.

Our objectives in calling for a National Strategy for haemochromatosis, include the following:

  • A National Strategy for Haemochromatosis to be implemented and coordinated, where everyone has equal access to testing, diagnosis, treatment and quality of care, regardless of where they live in Ireland or their financial circumstances
  • A genetic screening programme for haemochromatosis in primary and hospital care settings
  • New research on the prevalence of haemochromatosis in Ireland
  • A main lead on Haemochromatosis within the HSE/Department of Health

IHA News and Events

Ann Teehan talks to ‘Woman’s Way’ magazine

Ann Teehan shared her story ‘The Celtic Gene’ of her haemochromatosis journey with readers of ‘Woman’s Way’ magazine last year. Ann and her family are passionate about raising awareness of haemochromatosis, Ireland’s most common genetic disorder. Thank you Ann for sharing your personal journey with us! Read on for link to pdf of full article

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Happy New Year for 2025!

As we step into 2025, we’re filled with gratitude for your continued support and commitment to raising awareness about haemochromatosis. Together, we’ve made strides in educating and supporting those affected by iron overload, and we look forward to continuing this important work in the year ahead. May the new year bring all our haemochromatosis family health, happiness, and many moments of joy.

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Renewing your Membership of our Haemochromatosis Community!

Your membership of the IHA makes us stronger and gives us a collective voice to advocate on behalf of our members, patients and their families. At this time of year, we encourage all our members to renew your annual membership and continue to be part of our 1,000 strong community!

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