A national strategy for haemochromatosis was big on the agenda in Leinster House during May. Thank you to all the TDs and Senators who attended our briefing, in particular huge thanks to Senator Martin Conway, who hosted the event and Cllr Damian Boylan, who has long advocated for haemochromatosis, as Ireland’s most common genetic disorder, to be high on the health agenda.
Our objectives in calling for a National Strategy for haemochromatosis, include the following:
We are looking for a Volunteer Treasurer with an interest or a personal connection to haemochromatosis and who is interested in raising more awareness of Ireland’s most common genetic disorder. We are seeking individuals with skills and experience in finance, accountancy, book-keeping.
We are so proud to have been shortlisted for the Irish PR Awards in ‘Best Healthcare Campaign’ for our campaign work on World Haemochromatosis Awareness Week in 2023. Sincere thanks to all the team at Harris PR
We officially launched World Haemochromatosis Awareness Week in Phoenix Park in Dublin this week. Thank you to David Beggy, Margaret Mullett, Jessica Byrne, Ruby Harris-Pope and Sam Crowley for raising more awareness of Ireland’s most common genetic disorder
