A national strategy for haemochromatosis was big on the agenda in Leinster House during May. Thank you to all the TDs and Senators who attended our briefing, in particular huge thanks to Senator Martin Conway, who hosted the event and Cllr Damian Boylan, who has long advocated for haemochromatosis, as Ireland’s most common genetic disorder, to be high on the health agenda.
Our objectives in calling for a National Strategy for haemochromatosis, include the following:
World Haemochromatosis Awareness Week will take place from 1-7th June 2025. If you can help in any way, organise an information stand, or do an interview on local radio, we need your help! If you have new media contacts or if you know of entertainment or sports personalities who can endorse our campaign, please get in touch.
Our AGM takes place this year on Saturday 24th May 2025. There will be an option to attend in-person at the IBTS building in St. James’s Hospital, James Street, Dublin or online via webinar. Teas and coffees will be available from 10.30am and the business of the AGM will start at 11am.
Join us and Dr. Michelle Murphy, a Psychotherapist and lecturer in health and social care specialist and therapist. Her research has contributed to developing community and mental health services. Michelle offers practical, evidence-based brain health tips for everyday life.
