Sarah Keogh, Consultant Dietician, Eatwell.ie wrote and launched our new ‘Diet and Haemochromatosis’ guide, in conjunction with the Irish Nutrition and Dietetic Institute (INDI). Dr. Claire O’Brien, Head of Education at INDI, Margaret Mullett, Honourary Lifetime President and Brendan Keenan, voluntary Board member, IHA and Miriam Forde, Executive Director, IHA also attended the launch of […]
Our Winter 2021 Newsletter for Members & Supporters is out now. You can find all the latest news from our volunteers and members. Thank you to everyone who contributed! Read the latest newsletter online HERE As membership of the Irish Haemochromatosis Association makes us stronger and gives us a collective voice to advocate on behalf of members, we encourage you to […]
Dr. Gerard Crotty, Consultant Haematologist and Nurse Colette Cleary, Midland Regional Hospital, Tullamore will present a free online information event via zoom on haemochromatosis or ‘iron overload’ on Tuesday 30th November at 7pm. For more information email [email protected] or call 087 2853907. Everyone is welcome to attend this free event. Please find a poster for the event here: /shared_media/iha/media/docs/Haemochromatosis_Information_Meeting_Poster.pdf Please […]
Good news from the Irish Blood Transfusion Service. Although the IBTS are not accepting first time blood donors at the moment, they are making an exception for people with Haemochromatosis who wish to be donors. Check that you are eligible by calling 1850 731137 or go to www.giveblood .ie HOSPITALS At a national level according to […]
An article, ‘Raising GP awareness of Haemochromatosis’, was published in the March 2021 issue of Forum, the ICGP magazine. Thank you to Dr Brian Osbourne, Medical Director, ICGP for publishing the article and helping to raise awareness of haemochromatosis among GP members. You can read the full page article here – /shared_media/iha/media/docs/Forum_March_21-pages-7.pdf
Haemochromatosis or ‘iron overload’ is Ireland’s most common genetic condition. Early diagnosis is vital and if untreated can lead to organ damage or premature death. The Irish Haemochromatosis Association estimates there are at least 20,000 undiagnosed cases of Haemochromatosis in Ireland. Haemochromatosis is more common in Ireland than anywhere else in the world, as one […]
World Haemochromatosis Awareness Week takes place from the 1st to the 7th June this year. To commemorate this event, Haemochromatosis International is organising an online photographic competition, FotoFeXPO. ‘Rust Never Sleeps’ is the theme for the exhibition and was selected to illustrate how haemochromatosis can be found like rust or oxidation everywhere around the world. […]
1 in 5 Irish People Carry the Haemochromatosis Gene The Irish Haemochromatosis Association Launches Awareness Campaign for World Haemochromatosis Awareness Week 1st – 7th June 2020 Haemochromatosis or ‘iron overload’ is Ireland’s most common genetic condition. Early diagnosis is vital as lack of treatment can lead to premature death. Haemochromatosis is more common in Ireland […]
Dr. John Ryan, Consultant Hepatologist/Gastroenterologist, Beaumont Hospital, Dublin has advised that from a HH perspective, there is no specific evidence to suggest an increased risk of severe COVID19 in HH patients nor is there strong evidence to show that HH patients have a weakened immune system. There is a classic association between HH and vibrio infections […]
WHEN KARL MACKEY was in a bicycle accident four years ago, he had no idea his life was about to change, but not for the reasons you’d expect. After undergoing a series of tests in hospital, it became clear that he has hereditary haemochromatosis, and had been living with it for over four decades. A […]
