Oireachtas Briefing on Haemochromatosis
A national strategy for haemochromatosis was big on the agenda in Leinster House during May. Thank you to all the TDs and Senators who attended our briefing and submitted parliamentary questions
Author: irishha
Patient Information Event in Galway
We were delighted to meet everyone in-person and see people so engaged and asking lots of questions at our Galway Patient Information event at the Galway Bay Hotel in May 2023! Huge thanks to Dr. Brian Osborne, who gave a wonderful presentation. Thank you also to Dr Diarmuid Quinlan, Medical Director, Irish College of GPs. […]
Corporate Partnerships – Nominate us
Does your company have Charity of the Year partnerships? If you would like to nominate the Irish Haemochromatosis Association for a Charity of the Year Partnership please get in touch!
Who we are & our board
Executive Director – Miriam Forde Miriam is responsible for the operational management and along with the board, for the strategic direction of the Irish Haemochromatosis Association. Miriam’s role is to devise and implement campaigns to increase awareness, provide support and information resources for members and the general public, manage communications and develop partnerships with health […]
Governance & GDPR
Governance Structure The Irish Haemochromatosis Association is dedicated to ensuring a sound governance structure provides the basis from which we operate, in line with our core values. The IHA is a registered charity and a company limited by guarantee. It is governed by our Memorandum and Articles of Association and the Companies Act 2014. The […]
Our Charity
The Irish Haemochromatosis Association C.L.G. (IHA) is a registered charity in Ireland, established on a voluntary basis on the 20th July 1999. Our main charitable objective is to raise awareness of Ireland’s most common genetic disorder and provide an information and support resource for patients and their families and for those who are interested in […]
Corporate Involvement & Sponsorship
At the Irish Haemochromatosis Association, support from corporate partners is so incredibly important to us. We appreciate any support your business can give us, whether it be once off or continuous support, a Charity of the Year Partnership or an Event Sponsorship.
Advocacy & Media
Make your voice heard by asking your local TD to raise issues facing many haemochromatosis patients in Ireland, including the unfair and inequitable €80 charge for venesections for patients without Medical Cards or private health insurance.
We continue to lobby the HSE and the Department of Health to waive the cost of treatment for venesections and request that more GPs are equipped to provide venesection services in their practices.
Other Associations and Societies
Haemochromatosis International Haemochromatosis International is a global alliance of haemochromatosis associations, established to advance the health of people with haemochromatosis across Europe, North America, Australia, New Zealand, South African and South America. Haemochromatosis UK Haemochromatosis UK supports people in England, Scotland, Wales and Northern Ireland who live with genetic haemochromatosis. www.irishliverfoundation.ie The Irish Liver […]
Conchúr Ó Brolcháin
I’m in a place where I feel healthy and energetic My own personal haemochromatosis journey has been an interesting one. My father was diagnosed with Haemochromatosis in 2002 after bouts of severe fatigue that actually culminated in him being diagnosed with terminal cancer. His passing was extremely sad and traumatic for us all, but it […]