Early diagnosis of haemochromatosis is crucial When I was about 40, I began to feel tired, lethargic and had low libido. I went to the doctor but as the GP didn’t know the cause of my problems, I stopped attending the surgery. As the years went by, things got worse. I was getting headaches, […]
How a dive on the barrier reef uncovered a HH diagnosis In 2014, my wife and I had planned a visit to our daughter, Eimear, who lives in Brisbane, Australia. I decided that a chance to scuba dive at the Great Barrier Reef would be too good an opportunity to pass up. So I applied […]
My father and the ‘Celtic curse’ The ‘Celtic curse’ is the name popularly given to the condition haemochromatosis, a genetic disorder where excessive amounts of iron are absorbed from the diet, leading to organ and tissue damage and even death, if left untreated. It’s nicknamed the ‘Celtic curse’ because, while one-in-400 Europeans has the condition, […]
I feel extraordinarly lucky to have been diagnosed “I was diagnosed with type 2 diabetes more than 18 years ago and a test for haemochromatosis was one of the initial tests that the GP carried out. It showed up quickly that I had seriously high ferritin levels. I was not in good health at the time. […]
Fall from a horse leads to haemochromatosis diagnosis After a horse riding incident, Sean Carter suffered with backache and chest pain. He went to see his doctor after the fall, who enquired about his colouring. Confused, Sean asked the doctor if his colour was abnormal. The doctor told him that he had a bronze/grey pallor […]
Shout it from the mountains! ‘I was 59 when I was diagnosed with haemochromatosis and for the previous five years, I had been on medication for gout, pseudo gout, high cholesterol and eventually, rheumatoid arthritis. But when my GP checked my ferrtins levels, they came back as 1400, whereas the normal level in men ranges […]
It was a red letter day when I was diagnosed! Michael originally trained and worked as a teacher but has been an IT consultant for over 25 years. He was diagnosed with Haemochromatosis (HH) in August 2008. He says it was a red letter day for him as he finally knew what was wrong with him! […]
Sarah Keogh, Consultant Dietician, Eatwell.ie wrote and launched our new ‘Diet and Haemochromatosis’ guide, in conjunction with the Irish Nutrition and Dietetic Institute (INDI). Dr. Claire O’Brien, Head of Education at INDI, Margaret Mullett, Honourary Lifetime President and Brendan Keenan, voluntary Board member, IHA and Miriam Forde, Executive Director, IHA also attended the launch of […]
Our Winter 2021 Newsletter for Members & Supporters is out now. You can find all the latest news from our volunteers and members. Thank you to everyone who contributed! Read the latest newsletter online HERE As membership of the Irish Haemochromatosis Association makes us stronger and gives us a collective voice to advocate on behalf of members, we encourage you to […]
Dr. Gerard Crotty, Consultant Haematologist and Nurse Colette Cleary, Midland Regional Hospital, Tullamore will present a free online information event via zoom on haemochromatosis or ‘iron overload’ on Tuesday 30th November at 7pm. For more information email [email protected] or call 087 2853907. Everyone is welcome to attend this free event. Please find a poster for the event here: /shared_media/iha/media/docs/Haemochromatosis_Information_Meeting_Poster.pdf Please […]
