BloodHIT Conference & Our work with the IBTS

The Irish Haemochromatosis Association attended BlooDHIT (the Irish Blood Transfusion Service bi-annual Conference on Blood Donation, Haematology Infection and Transfusion), where we were given opportunities to learn from national and international research and experts.

Thank you to Dr. Allison Waters and Stephanie Deane for helping to raise awareness of haemochromatosis among a wide audience. Dr. Waters and her team at the IBTS are also looking at doing publishing a paper which researched the prevalence of haemochromatosis per county. We look forward to seeing the research published in due course.

The IBTS also continue to support our annual AGM at their head offices, where they donate the use of the space to us and sponsor our annual members AGM lunch.

We would also like to extend a fond farewell to Professor Tor Hervig, outgoing Medical & Scientific Director of the IBTS, who has been a great friend of the Association and as a Norwegian, has a very keen interest in haemochromatosis. We look forward to the next BloodHIT Conference.

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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