‘Towards an improved quality of life’, the first worldwide survey of almost 1,500 haemochromatosis patients, has been recently published in the Health Expectations journal.
Upcoming Meetings include Cork Patient Information Meeting on Tuesday, 28th November at 7pm and Active Retired Ireland Meeting, Thursday 16th November at 3pm.
Professor Pierre Brissot, a world-renowned haemochromatosis researcher, awarded The National Order of the Legion of Honor
Our Honorary Life-time President, Margaret Mullett met with President Higgins and his wife Sabina at Aras an Uachtarain for an event honouring hundreds of volunteers.
If you would like to set up your own fundraising page and raise funds for the work of the Irish Haemochromatosis Association, it is very easy!
Mark Cagney, Irish broadcasting legend and well-known Irish television presenter and journalist, was interviewed on Ireland AM about World Haemochromatosis Awareness Week and what it means to shine a light on Ireland’s most common genetic disorder. Mark talks about how he was diagnosed by chance and how his diagnosis saved his life. You can listen […]
