Dave Doyle was inspired to climb Africa’s highest mountain, when his daughter Kate was diagnosed with haemochromatosis. Huge thanks to Dave and his family for raising an amazing €1,105 to support education and awareness of haemochromatosis in Ireland.
Our Cork Patient Information event ‘Understanding Haemochromatosis’ with Professor Diarmaid Houlihan, took place in November 2023 at the Clayton Hotel Cork City. Thank you to everyone who came along!
‘Putting your best arm forward’, Siobhan Cronin, Editor, The Southern Star newspaper talks about how important awareness is of Ireland’s most common genetic disorder and talks us through her haemochromatosis journey.
There is still time to donate to our Christmas Jumper Campaign this year! Miriam is raising funds to support our ongoing work and projects, including our Helpline, information resources and vital research work.
Maria Lucey, Dietician in Ireland and Bermuda, talks to the Irish Haemochromatosis Association about her recent diagnosis with haemochromatosis. Watch Maria’s latest video here!
We send our condolences to all the family and friends of our dear friends Edmund Lynch and Janet Fernau, who passed away recently.
‘Towards an improved quality of life’, the first worldwide survey of almost 1,500 haemochromatosis patients, has been recently published in the Health Expectations journal.
Upcoming Meetings include Cork Patient Information Meeting on Tuesday, 28th November at 7pm and Active Retired Ireland Meeting, Thursday 16th November at 3pm.
Professor Pierre Brissot, a world-renowned haemochromatosis researcher, awarded The National Order of the Legion of Honor
Our Honorary Life-time President, Margaret Mullett met with President Higgins and his wife Sabina at Aras an Uachtarain for an event honouring hundreds of volunteers.
