Edmund Lynch, Friend and Member of the Irish Haemochromatosis Association; Producer, Director, Activist & Historian
Our friend and long-standing member, Edmund Lynch sadly passed away in October. Edmund was a former producer for RTE and an activist, historian and broadcaster and was a trailblazing Irish LGBTQ+ activist and oral historian. He was a very loyal member of our Association over many years and would never miss an AGM or patient information event, as he was passionate about raising more awareness of haemochromatosis in Ireland. On behalf of all our members and the voluntary board of the Irish Haemochromatosis Association, we would like to extend our sincere condolences to Edmund’s family. Ar dheis Dé go raibh a anam.
Janet Fernau, Founder of the UK Haemochromatosis Society
In 1990 Janet Fernau, together with her husband Guy, founded the UK Haemochromatosis Society (HUK) and worked tirelessly over 25 years as to raise awareness of haemochromatosis. Janet was an incredible support and friend to Margaret Mullett and the Board of the Irish Haemochromatosis Association over many years and for that we are eternally grateful. Those who remember Janet, will have known her as a true friend of the Irish haemochromatosis community.
Our AGM takes place this year on Saturday 24th May 2025. There will be an option to attend in-person at the IBTS building in St. James’s Hospital, James Street, Dublin or online via webinar. Teas and coffees will be available from 10.30am and the business of the AGM will start at 11am.
Join us and Dr. Michelle Murphy, a Psychotherapist and lecturer in health and social care specialist and therapist. Her research has contributed to developing community and mental health services. Michelle offers practical, evidence-based brain health tips for everyday life.
New GP venesection nurse training and education progamme for GP Practice Nurses in Ireland. As part of our funding from the Hospital Saturday Fund, we partnered with the Education and Training Programme team in Sligo, Leitrim, Roscommon and Donegal to develop a competency-based curriculum to manage venesection treatment for patients.
