Edmund Lynch, Friend and Member of the Irish Haemochromatosis Association; Producer, Director, Activist & Historian
Our friend and long-standing member, Edmund Lynch sadly passed away in October. Edmund was a former producer for RTE and an activist, historian and broadcaster and was a trailblazing Irish LGBTQ+ activist and oral historian. He was a very loyal member of our Association over many years and would never miss an AGM or patient information event, as he was passionate about raising more awareness of haemochromatosis in Ireland. On behalf of all our members and the voluntary board of the Irish Haemochromatosis Association, we would like to extend our sincere condolences to Edmund’s family. Ar dheis Dé go raibh a anam.
Janet Fernau, Founder of the UK Haemochromatosis Society
In 1990 Janet Fernau, together with her husband Guy, founded the UK Haemochromatosis Society (HUK) and worked tirelessly over 25 years as to raise awareness of haemochromatosis. Janet was an incredible support and friend to Margaret Mullett and the Board of the Irish Haemochromatosis Association over many years and for that we are eternally grateful. Those who remember Janet, will have known her as a true friend of the Irish haemochromatosis community.
Your membership of the IHA makes us stronger and gives us a collective voice to advocate on behalf of our members, patients and their families. At this time of year, we encourage all our members to renew your annual membership and continue to be part of our 1,000 strong community!
Wear your Christmas jumper to support the work of the Irish Haemochromatosis Association OR make a gift of a donation big or small this holiday season to ensure that patients in Ireland get the help and support they need.
Thank you to all the Donegal community who came out in great numbers to attend our recent Patient Information evening in the Clanree Hotel in Letterkenny, Co Donegal. Over 120 people, some who travelled long distances, joined us on the night to hear Dr. Paul Grant’s talk and presentation on haemochromatosis.
