Come along to our next patient information event in Sligo on Wednesday 8th May at 7.30pm in the Glasshouse Hotel, Sligo. All are welcome to attend this free in-person event. We look forward to seeing you all there. For more information email – [email protected]
Our Members’ AGM takes place on Saturday 13th April 2024, with Guest Speakers Professor Geraldine McCarthy, Consultant Rheumatologist, Mater Hospital Dublin and Clinical Nurse Specialist, Fiona Colclough, Beaumont Hospital Dublin. We look forward to seeing as many of you as possible on the day!
‘Raising awareness of Haemochromatosis’ article appeared in the March 2024 issue of Hospital Professional News, featuring a Gastroenterology & Endocrinology focus. You can read a copy of the article from the Irish Haemochromatosis Association as a pdf or online.
World Haemochromatosis Awareness Week will take place this year from 1-7th June 2024. Can you help? You could set up an information stand, do an interview on local radio or like and share our social media posts. Maybe you might know of TV or well-known personalities who could endorse our campaign. Let us know.
Run, walk or jog the VHI Women’s Mini Marathon this year on the 2nd June 2024 in Dublin. We have information packs, tshirts and resources that will help you fundraise and make such a positive impact on the work of the Irish Haemochromatosis Association.
Dr. John Casey gave an excellent presentation and talk on haemochromatosis in Tralee, Co Kerry in March 2024 at the famous Rose Hotel. We were joined by Nurse Noirin Taylor and friend and volunteer with the IHA, Raphael Crowley.
Huge thanks to our Voluntary Board Member, David Beggy who gave a wonderful talk and presentation on haemochromatosis to the East Meath Active Retirement Ireland Group in Julianstown. We are aiming to involve many more Active Retirement Ireland Groups around Ireland in bringing awareness talks to groups in every county.
Dave Doyle was inspired to climb Africa’s highest mountain, when his daughter Kate was diagnosed with haemochromatosis. Huge thanks to Dave and his family for raising an amazing €1,105 to support education and awareness of haemochromatosis in Ireland.
Our Cork Patient Information event ‘Understanding Haemochromatosis’ with Professor Diarmaid Houlihan, took place in November 2023 at the Clayton Hotel Cork City. Thank you to everyone who came along!
‘Putting your best arm forward’, Siobhan Cronin, Editor, The Southern Star newspaper talks about how important awareness is of Ireland’s most common genetic disorder and talks us through her haemochromatosis journey.
