Author: Miriam Forde

Irish PR Awards

We are so proud to have been shortlisted for the Irish PR Awards in ‘Best Healthcare Campaign’ for our campaign work on World Haemochromatosis Awareness Week in 2023. Sincere thanks to all the team at Harris PR

Thank you to everyone who made World Haemochromatosis Awareness Week a huge success!

We officially launched World Haemochromatosis Awareness Week in Phoenix Park in Dublin this week. Thank you to David Beggy, Margaret Mullett, Jessica Byrne, Ruby Harris-Pope and Sam Crowley for raising more awareness of Ireland’s most common genetic disorder

Diet & Haemochromatosis Webinar

Join us for our upcoming Diet & Haemochromatosis webinar with Sarah Keogh, leading Dietician and Nutritionist www.eatwell.ie on Wednesday 19th June at 7pm. There will be lots of opportunities for questions too. We look forward to seeing you then. Register via zoom link today!

World Haemochromatosis Awareness Week 2024

World Haemochromatosis Awareness Week takes place from this Saturday, 1st June to the 7th June 2024. Our mision is to promote early diagnosis of haemochromatosis. 1 in 5 of us are carriers of the gene and 1 in 83 people in Ireland are predisposed to develop haemochromatosis.

Nominate us to win in AIB Community Fund

Nominate us to win up to €28,000 in AIB’s Community Fund this year. Every vote will count towards helping us continue to support haemochromatosis patients and their families in Ireland. The deadline is the 12th June. Thank you!

EIC (European Iron Conference) & EAFPH AGM

We were delighted to attend the European Iron Conference EIC in Toulouse to represent patients and also attend the European Federation of haemochromatosis patients (EFAPH) AGM.

Sligo Information Evening

Come along to our next patient information event in Sligo on Wednesday 8th May at 7.30pm in the Glasshouse Hotel, Sligo. All are welcome to attend this free in-person event. We look forward to seeing you all there. For more information email – [email protected]

AGM 2024, Saturday 13th 2024

Our Members’ AGM takes place on Saturday 13th April 2024, with Guest Speakers Professor Geraldine McCarthy, Consultant Rheumatologist, Mater Hospital Dublin and Clinical Nurse Specialist, Fiona Colclough, Beaumont Hospital Dublin. We look forward to seeing as many of you as possible on the day!

Hospital Professional News Article on Haemochromatosis

‘Raising awareness of Haemochromatosis’ article appeared in the March 2024 issue of Hospital Professional News, featuring a Gastroenterology & Endocrinology focus. You can read a copy of the article from the Irish Haemochromatosis Association as a pdf or online.

Run, Walk or Jog the VHI Women’s Mini Marathon, 2nd June 2024

Run, walk or jog the VHI Women’s Mini Marathon this year on the 2nd June 2024 in Dublin. We have information packs, tshirts and resources that will help you fundraise and make such a positive impact on the work of the Irish Haemochromatosis Association.