Ann Teehan shared her story ‘The Celtic Gene’ of her haemochromatosis journey with readers of ‘Woman’s Way’ magazine last year. Ann and her family are passionate about raising awareness of haemochromatosis, Ireland’s most common genetic disorder. Thank you Ann for sharing your personal journey with us! Read on for link to pdf of full article
As we step into 2025, we’re filled with gratitude for your continued support and commitment to raising awareness about haemochromatosis. Together, we’ve made strides in educating and supporting those affected by iron overload, and we look forward to continuing this important work in the year ahead. May the new year bring all our haemochromatosis family health, happiness, and many moments of joy.
Your membership of the IHA makes us stronger and gives us a collective voice to advocate on behalf of our members, patients and their families. At this time of year, we encourage all our members to renew your annual membership and continue to be part of our 1,000 strong community!
Wear your Christmas jumper to support the work of the Irish Haemochromatosis Association OR make a gift of a donation big or small this holiday season to ensure that patients in Ireland get the help and support they need.
Thank you to all the Donegal community who came out in great numbers to attend our recent Patient Information evening in the Clanree Hotel in Letterkenny, Co Donegal. Over 120 people, some who travelled long distances, joined us on the night to hear Dr. Paul Grant’s talk and presentation on haemochromatosis.
We’re thrilled to announce that the Irish Haemochromatosis Association has been nominated and shortlisted for TWO Irish Healthcare Awards for a Patient Education Project and Public Health Initiative Award.
Congratulations to Tony McDevittt, long-standing friend and volunteer with the Irish Haemochromatosis Association! Tony is proud to have made his 50th blood donation to the Irish Blood Transfusion Service and has donated much-needed blood donations over several years.
We were deeply saddened to hear that our former President of the Irish Haemochromatosis Association, Mary O’Rourke passed away. Sincere condolences to her family, her wide circle of friends and to all who knew Mary as a well-known politician, who devoted decades of her life to Irish politics.
The Irish Haemochromatosis Association has a new Constitution which was reviewed and drafted pro bono in line with the requirements of the Charity Act by Matheson Solicitors. Sincere thanks to Matheson and their team and to our Board Member, Paul Cashman-Roberts for donating their time and expertise to draft the Constitution over many months. In […]
EFAPH (European Federation of Associations of Patients with Haemochromatosis) are looking to recruit new board members onto their Board. EFAPH is an umbrella organisation of European haemochromatosis representative organisations and charities who support patients in their respective countries.
