Dr. John Casey gave an excellent presentation and talk on haemochromatosis in Tralee, Co Kerry in March 2024 at the famous Rose Hotel. We were joined by Nurse Noirin Taylor and friend and volunteer with the IHA, Raphael Crowley.
Huge thanks to our Voluntary Board Member, David Beggy who gave a wonderful talk and presentation on haemochromatosis to the East Meath Active Retirement Ireland Group in Julianstown. We are aiming to involve many more Active Retirement Ireland Groups around Ireland in bringing awareness talks to groups in every county.
Dave Doyle was inspired to climb Africa’s highest mountain, when his daughter Kate was diagnosed with haemochromatosis. Huge thanks to Dave and his family for raising an amazing €1,105 to support education and awareness of haemochromatosis in Ireland.
Our Cork Patient Information event ‘Understanding Haemochromatosis’ with Professor Diarmaid Houlihan, took place in November 2023 at the Clayton Hotel Cork City. Thank you to everyone who came along!
‘Putting your best arm forward’, Siobhan Cronin, Editor, The Southern Star newspaper talks about how important awareness is of Ireland’s most common genetic disorder and talks us through her haemochromatosis journey.
There is still time to donate to our Christmas Jumper Campaign this year! Miriam is raising funds to support our ongoing work and projects, including our Helpline, information resources and vital research work.
Join us on National Christmas Jumper Day 2023, Friday December 8th – it’s a great excuse to raise funds for the Irish Haemochromatosis Association! Visit: www.idonate.ie/event/christmasjumperday2023
Membership of the Association makes us stronger and gives us a collective voice to advocate on behalf of our members, patients and their families. At this time of year, we encourage all our members to renew your annual membership.
Maria Lucey, Dietician in Ireland and Bermuda, talks to the Irish Haemochromatosis Association about her recent diagnosis with haemochromatosis. Watch Maria’s latest video here!
We send our condolences to all the family and friends of our dear friends Edmund Lynch and Janet Fernau, who passed away recently.
