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Nominate us to win in AIB Community Fund

To all our Haemochromatosis Community, we need YOUR help! Please nominate us to win €28,000 in AIB’s annual Community Fund to help continue our vital work in supporting patients and their families. Every vote counts and will go towards helping us continue our work in supporting patients and their families and raising awareness of Ireland’s most common genetic disorder. Deadline: 12th June. All your votes count. Thank you!

✅ Visit – https://aib.ie/personal-forms/community-fund

✅ Enter you name & email

✅ Charity Name: Irish Haemochromatosis Association

✅ Charity Registration No.: 20049737

✅ Charity Location: Greater Dublin

✅ Social Theme: Other

✅ Why should we be funded: To ensure that no one in Ireland goes untreated or undiagnosed with haemochromatosis or ‘iron overload’ and to continue our vital work in supporting patients and their families

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

July 27, 2026 No Comments

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

July 27, 2026 No Comments

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

June 2, 2026 No Comments

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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