Launch of World Haemochromatosis Awareness Week!

OVER 20,000 PEOPLE IN IRELAND ARE LIVING WITH UNDIAGNOSED  HAEMOCHROMATOSIS OR ‘IRON OVERLOAD’

And we’re off! To mark World Haemochromatosis Awareness Week 2024, which will take place from 1st – 7th June, the Irish Haemochromatosis Association aims to raise awareness of the condition and is urging people to ‘Get Checked for Haemochromatosis’ and understand the symptoms in order to save lives – symptoms that range from chronic tiredness and joint pain, to abdominal pain and irregular heartbeat.

We officially launched World Haemochromatosis Awareness Week in Phoenix Park in Dublin this week. Thank you to our wonderful Ambassador and GAA All Star sportsman, David Beggy, Margaret Mullett, Honorary President IHA, Jessica Byrne, volunteer and student nurse, Ruby Harris-Pope aged 6 and Sam Crowley aged 12 for helping to raise more awareness of Ireland’s most common genetic disorder and shine a light on the condition. Sincere thanks in advance to all the media, both print, online and broadcast who have scheduled interviews with our volunteers and members and who continue to help us spread the word. Thank you to the GPs and Consultants who support us every year by promoting our #Getchecked #Gettested #behaemochromatosisaware and #Knowthesymptoms messages.

Thank you also to the City and Council Councils in all the counties in Ireland who are lighting up their municipal and public buildings and monuments in red, to mark this very important week in our calendar. This year will see several City and County Councils throughout the country supporting the campaign and joining the wider, international initiative to ‘Light Up Red’, lighting up several iconic public buildings during World Haemochromatosis Awareness Week. Buildings being illuminated in red will include the Dublin Convention Centre, Fingal Town Hall, Cork City Hall, Limerick Council Offices, Sligo City Hall, Donegal Public Services Centre and Kerry County Council Buildings, Tralee, Princes Quay and Ashe Memorial Hall Building, Tralee, Killarney Town Hall and Kenmare Courthouse Building, Kenmare, Co. Kerry.

For more information and a copy of our launch press release, you can read the full release here – https://haemochromatosis.ie/wp-content/uploads/2024/05/Press-Release-World-Haemochromatosis-Awareness-Week-2024-2.pdf

If you would like to participate in raising more awarenes of genetic haemochromatosis, just send us an email to miriam@haemochromatosis.ie or if you would like to organise an information stand or a fundraising coffee morning in support of World Awareness Week, please get in touch, info@haemochromatosis.ie. If you would like to donate to support our work and provide information and resources for more patients and their families in Ireland, you can donate here – https://haemochromatosis.ie/donate-to-the-iha

Information & Resources for Patients:

We provide information, support and resources for haemochromatosis patients in Ireland through our:

IHA News and Events

Diet & Haemochromatosis Webinar

Join us for our upcoming Diet & Haemochromatosis webinar with Sarah Keogh, leading Dietician and Nutritionist www.eatwell.ie on Wednesday 19th June at 7pm. There will be lots of opportunities for questions too. We look forward to seeing you then. Register via zoom link today!

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Launch of World Haemochromatosis Awareness Week!

We officially launched World Haemochromatosis Awareness Week in Phoenix Park in Dublin this week. Thank you to David Beggy, Margaret Mullett, Jessica Byrne, Ruby Harris-Pope and Sam Crowley for raising more awareness of Ireland’s most common genetic disorder

Read More »

World Haemochromatosis Awareness Week 2024

World Haemochromatosis Awareness Week takes place from this Saturday, 1st June to the 7th June 2024. Our mision is to promote early diagnosis of haemochromatosis. 1 in 5 of us are carriers of the gene and 1 in 83 people in Ireland are predisposed to develop haemochromatosis.

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