World Haemochromatosis Awareness Week takes place from this Saturday, 1st June until the 7th June. We want everyone to be haemochromatosis aware! Please help in any way you can. If you would like to contact any of the local media in your area, do an interview on local radio or help do a coffee morning to raise funds or help in any other way, we would love to hear from you! Our mission as always will be to promote early diagnosis of haemochromatosis and educate and raise awareness of Ireland’s most common genetic disorder. 1 in 5 of us are carriers and 1 in 83 Irish people are predisposed to develop haemochromatosis.
Don’t forget to follow us on charity pages on social media on facebook, instagram, twitter and check out our new Linkedin page – and of course, like and share our posts. You can also use our visual, ‘I support World Haemochromatosis Awareness Week’ on your own social media pages and posts, or even use it as a new temporary profile picture!
We will also have a number of public buildings and monuments lit up red to highlight our campaign again this year. Huge thanks to all the City and County councils across many counties, who have helped light up their buildings to mark our campaign. If you would like to get in touch with us, email [email protected]
Your membership of the IHA makes us stronger and gives us a collective voice to advocate on behalf of our members, patients and their families. At this time of year, we encourage all our members to renew your annual membership and continue to be part of our 1,000 strong community!
Wear your Christmas jumper to support the work of the Irish Haemochromatosis Association OR make a gift of a donation big or small this holiday season to ensure that patients in Ireland get the help and support they need.
Thank you to all the Donegal community who came out in great numbers to attend our recent Patient Information evening in the Clanree Hotel in Letterkenny, Co Donegal. Over 120 people, some who travelled long distances, joined us on the night to hear Dr. Paul Grant’s talk and presentation on haemochromatosis.
