World Haemochromatosis Awareness Week takes place from this Saturday, 1st June until the 7th June. We want everyone to be haemochromatosis aware! Please help in any way you can. If you would like to contact any of the local media in your area, do an interview on local radio or help do a coffee morning to raise funds or help in any other way, we would love to hear from you! Our mission as always will be to promote early diagnosis of haemochromatosis and educate and raise awareness of Ireland’s most common genetic disorder. 1 in 5 of us are carriers and 1 in 83 Irish people are predisposed to develop haemochromatosis.
Don’t forget to follow us on charity pages on social media on facebook, instagram, twitter and check out our new Linkedin page – and of course, like and share our posts. You can also use our visual, ‘I support World Haemochromatosis Awareness Week’ on your own social media pages and posts, or even use it as a new temporary profile picture!
We will also have a number of public buildings and monuments lit up red to highlight our campaign again this year. Huge thanks to all the City and County councils across many counties, who have helped light up their buildings to mark our campaign. If you would like to get in touch with us, email [email protected]
Ann Teehan shared her story ‘The Celtic Gene’ of her haemochromatosis journey with readers of ‘Woman’s Way’ magazine last year. Ann and her family are passionate about raising awareness of haemochromatosis, Ireland’s most common genetic disorder. Thank you Ann for sharing your personal journey with us! Read on for link to pdf of full article
As we step into 2025, we’re filled with gratitude for your continued support and commitment to raising awareness about haemochromatosis. Together, we’ve made strides in educating and supporting those affected by iron overload, and we look forward to continuing this important work in the year ahead. May the new year bring all our haemochromatosis family health, happiness, and many moments of joy.
Your membership of the IHA makes us stronger and gives us a collective voice to advocate on behalf of our members, patients and their families. At this time of year, we encourage all our members to renew your annual membership and continue to be part of our 1,000 strong community!
