World Haemochromatosis Awareness Week takes place from this Saturday, 1st June until the 7th June. We want everyone to be haemochromatosis aware! Please help in any way you can. If you would like to contact any of the local media in your area, do an interview on local radio or help do a coffee morning to raise funds or help in any other way, we would love to hear from you! Our mission as always will be to promote early diagnosis of haemochromatosis and educate and raise awareness of Ireland’s most common genetic disorder. 1 in 5 of us are carriers and 1 in 83 Irish people are predisposed to develop haemochromatosis.
Don’t forget to follow us on charity pages on social media on facebook, instagram, twitter and check out our new Linkedin page – and of course, like and share our posts. You can also use our visual, ‘I support World Haemochromatosis Awareness Week’ on your own social media pages and posts, or even use it as a new temporary profile picture!
We will also have a number of public buildings and monuments lit up red to highlight our campaign again this year. Huge thanks to all the City and County councils across many counties, who have helped light up their buildings to mark our campaign. If you would like to get in touch with us, email miriam@haemochromatosis.ie
Information & Resources For Patients
We provide information, support and resources for haemochromatosis patients in Ireland through our:
- Helpline – Telephone (01) 8735911 or Email info@haemochromatosis.ie
- Information guides and resources – https://haemochromatosis.ie/patients-info
- Patient Stories – see in the “your stories” page – https://haemochromatosis.ie/your-stories
- Membership support – all members receive an introduction pack with printed guides and information materials. If you would like to sign up as a new member, you can join us here – https://haemochromatosis.ie/become-a-member
- Testing for haemochromatosis – You can request a biochemical or iron panel test from your GP. If either your ferritin and/or TSat is raised, it could indicate haemochromatosis. However a genetic test will determine if you have haemochromatosis. You can also order genetic test kits for hereditary haemochromatosis online here through empowerDX Ireland: (https://www.empowerdx.ie/empowerdx-ireland-shop-products/haemochromatosis), who are currently offering a 20% discount (10% on the top of that for those who sign up to receive their newsletter).
