New IHA Constitution

The Irish Haemochromatosis Association has a new Constitution which was reviewed and drafted pro bono in line with the requirements of the Charity Act by Matheson Solicitors. Sincere thanks to Matheson and their team and to our Board Member, Paul Cashman-Roberts for donating their time and expertise to draft the Constitution over many months. In July of this year, the Government passed the Charities (Amendment) Act 2024. This Act, which introduces a range of amendments and updates to the Charities Act 2009, the Charities Act 1961, and the Taxes Consolidation Act 1997 respectively, amounting to a wide-reaching reform of charity governance.

Thank you from all of us at the Irish Haemochromatosis Association to Matheson Solicitors for sponsoring this important project. If you would like a copy of the Constitution, please email Miriam at [email protected] to request a copy or alternatively you can download a copy here – Download New Constitution

IHA News and Events

World Haemochromatosis Awareness Week 1-7th June 2025

World Haemochromatosis Awareness Week will take place from 1-7th June 2025. If you can help in any way, organise an information stand, or do an interview on local radio, we need your help! If you have new media contacts or if you know of entertainment or sports personalities who can endorse our campaign, please get in touch.

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AGM 24th May 2025: Guest Speaker, Professor Frank Murray

Our AGM takes place this year on Saturday 24th May 2025. There will be an option to attend in-person at the IBTS building in St. James’s Hospital, James Street, Dublin or online via webinar. Teas and coffees will be available from 10.30am and the business of the AGM will start at 11am.

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