New IHA Constitution

The Irish Haemochromatosis Association has a new Constitution which was reviewed and drafted pro bono in line with the requirements of the Charity Act by Matheson Solicitors. Sincere thanks to Matheson and their team and to our Board Member, Paul Cashman-Roberts for donating their time and expertise to draft the Constitution over many months. In July of this year, the Government passed the Charities (Amendment) Act 2024. This Act, which introduces a range of amendments and updates to the Charities Act 2009, the Charities Act 1961, and the Taxes Consolidation Act 1997 respectively, amounting to a wide-reaching reform of charity governance.

Thank you from all of us at the Irish Haemochromatosis Association to Matheson Solicitors for sponsoring this important project. If you would like a copy of the Constitution, please email Miriam at miriam@haemochromatosis.ie to request a copy or alternatively you can download a copy here – Download New Constitution

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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