The Irish Haemochromatosis Association has a new Constitution which was reviewed and drafted pro bono in line with the requirements of the Charity Act by Matheson Solicitors. Sincere thanks to Matheson and their team and to our Board Member, Paul Cashman-Roberts for donating their time and expertise to draft the Constitution over many months. In July of this year, the Government passed the Charities (Amendment) Act 2024. This Act, which introduces a range of amendments and updates to the Charities Act 2009, the Charities Act 1961, and the Taxes Consolidation Act 1997 respectively, amounting to a wide-reaching reform of charity governance.
Thank you from all of us at the Irish Haemochromatosis Association to Matheson Solicitors for sponsoring this important project. If you would like a copy of the Constitution, please email Miriam at [email protected] to request a copy or alternatively you can download a copy here – Download New Constitution
Ann Teehan shared her story ‘The Celtic Gene’ of her haemochromatosis journey with readers of ‘Woman’s Way’ magazine last year. Ann and her family are passionate about raising awareness of haemochromatosis, Ireland’s most common genetic disorder. Thank you Ann for sharing your personal journey with us! Read on for link to pdf of full article
As we step into 2025, we’re filled with gratitude for your continued support and commitment to raising awareness about haemochromatosis. Together, we’ve made strides in educating and supporting those affected by iron overload, and we look forward to continuing this important work in the year ahead. May the new year bring all our haemochromatosis family health, happiness, and many moments of joy.
Your membership of the IHA makes us stronger and gives us a collective voice to advocate on behalf of our members, patients and their families. At this time of year, we encourage all our members to renew your annual membership and continue to be part of our 1,000 strong community!
