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‘Towards an Improved Quality of Life for Haemochromatosis Patients’: Survey

‘Towards an improved quality of life’, the first worldwide survey of almost 1,500 haemochromatosis patients, has been recently published in the Health Expectations journal. The authors identified the quality of life aspects and research priorities that concern haemochromatosis patients the most. Thank you to Dr. Graça Porto and members of the Haemochromatosis International and EFAPH committees who shared this article with us. Link to access full article: https://onlinelibrary.wiley.com/doi/10.1111/hex.13830

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

July 27, 2026 No Comments

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

July 27, 2026 No Comments

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

June 2, 2026 No Comments

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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