Cork Patient Information Event

Our Cork Patient Information event ‘Understanding Haemochromatosis’ with Professor Diarmaid Houlihan, took place on Tuesday 28th November 2023 at the Clayton Hotel Cork City. Professor Houlihan is a Consultant Gastroenterologist working in the Bon Secours in Cork.

We welcomed patients, their families and those who wanted to find out more about haemochromatosis. Thank you to everyone who attended on the night and participated in a very engaging and informative Question & Answer session with Diarmaid, our voluntary Board Member, Frank McHugh and long-time campaigner and advocate for haemochromatosis, Cllr Damian Boylan who also spoke about his own haemochromatosis journey.

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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