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Christmas Jumper Cheer!

There is still time to donate to our Christmas Jumper Campaign this year! Miriam is raising funds to support our ongoing work and projects, including our Helpline which supports patients and their families, our information resources for nurses, GPs and healthcare staff and our vital research work. Thank you to everyone who has supported Miriam’s fundraising page so far. We know that people are called on to support many causes in the lead up to Christmas, but if you are able to make any donation big or small, we would be very grateful for your help. Thank you! This donation page will close at the end of January 2024. For donations: https://www.idonate.ie/fundraiser/MiriamFordeIrishHaemochromatosis?fbclid=IwAR2adW6ycAqQREQ72rmCeIL08JPt6C7Gp3CE8MacvTy-U91tyKR9x7aA_6w

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

July 27, 2026 No Comments

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

July 27, 2026 No Comments

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

June 2, 2026 No Comments

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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