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For Patients
Information for Patients
We provide information, support and resources for haemochromatosis patients in Ireland through our:
- Helpline – Telephone (01) 8735911 or Email [email protected]
- Information guides and resources – see below
- Informational videos – see below
- Patient Stories – see in the “your stories” page
- Membership support – all members receive an introduction pack with printed guides and information materials
- For information and to order genetic test kits for HH, you can order online here through empowerDX Ireland: (https://www.empowerdx.ie/empowerdx-ireland-shop-products/haemochromatosis).
We have a number of guides for Patients, links to which you can find below. You can also access information on common symptoms, diagnosis, treatment and management of the condition by reading our articles under the “Haemochromatosis” menu tab about haemochromatosis:
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- What is haemochromatosis?
- Haemochromatosis: Are we pumping too much iron (Irish Pharmacy Union interview)
- Irish Blood Transfusion Service Guidelines 2023
- Journal of Nursing & Healthcare. Learning to live with Hereditary Haemochromatosis. A Qualitative Descriptive Study
- Treatment of Haemochromatosis: Arthropathy Advice for Patients (HARI)
- The Nursing Care of a Haemochromatosis Patient
- Irish Haemochromatosis Association Handbook 2016
Informational Videos
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Need Support or Advice?
If you or someone you know has Haemochromatosis, we are always ready to help. Use our helpline, send us an email or join us using the links below.
