The Irish Haemochromatosis Association C.L.G. (IHA) is a registered charity in Ireland, established on a voluntary basis on the 20th July 1999. Our main charitable objective is to raise awareness of Ireland’s most common genetic disorder and provide an information and support resource for patients and their families and for those who are interested in haemochromatosis, but who may not suffer from haemochromatosis.
Since its foundation, the Irish Haemochromatosis Association has pursued its aims and objectives due to the passion, commitment and energy of its unpaid volunteers and particularly through the work of the Chair, Honorary Life-time President, Margaret Mullett and our active voluntary Board of Directors.
‘Our vision is to ensure that no one in Ireland goes undiagnosed or untreated’
The Irish Haemochromatosis Association is a patient-focused health, advocacy and support group for haemochromatosis (or iron overload) patients, families, the medical profession and those interested in haemochromatosis in Ireland. By raising awareness and promoting early diagnosis and treatment, we ensure that no one in Ireland goes undiagnosed or untreated.
We envisage a future where there will be a nationwide awareness of HH by members of the public, the medical profession, policymakers, opinion formers and the media. We work to ensure that the IHA will continue to develop a strong membership and volunteer base and will be governed by Governance and GDPR policies and procedures (in conjunction with the Charities Act 2009 and the Charities Regulatory Authority Governance Code).
In building and strengthening the Irish Haemochromatosis Association, we exercise the following values:
- Equality & Inclusion:
We strive to promote equality and inclusion in society to ensure that all members of society are treated consistently in line with equality opportunity and fair access, particularly equity of access to venesections for ALL sufferers.
- Transparency & Accountability:
We value open and honest communication with all stakeholders, as well as ensuring regular and effective communication with those stakeholders and the wider public about the organisation.
- Respect & Dedication:
We are respectful to all stakeholders, while being passionate and committed to achieving our aims and objectives.
We strive to be honest, fair and independent, making it easier to manage conflicts of interest/loyalties and, so, protect and promote our organisation’s reputation.
Our Strategic Aims & Objectives
We will build on the previous successes of the work of the IHA over a period of 24 years and focus our efforts on fulfilling and achieving our aims and objectives as follows:
- Raise awareness and promote knowledge and understanding of haemochromatosis
- Provide information resources and support and advocate for those affected by HH
- Establish and maintain links and synergies with relevant organisations and work in partnership with them
- Build and strengthen the organisation to achieve sustainability
- Ensure governance policies and procedures are maintained