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‘Team Haem’ – VHI Women’s Mini Marathon

Join ‘Team Haem’ – VHI Women’s Mini Marathon 2026

Exciting news! Additional registrations for the VHI Women’s Mini Marathon have opened up and now is your chance to get involved!

We’re calling on our incredible haemochromatosis community to join ‘Team Haem’ and take part in this amazing event. Whether you walk, run, or jog, every step makes a difference.

Sign up with friends, family, or colleagues and help raise vital funds to support the work of the Irish Haemochromatosis Association, supporting patients, raising awareness, and promoting early diagnosis across Ireland.

We need your help and support! Be part of something meaningful, have fun, and make an impact along the way 💚

To get in touch for tshirts and pack and to join Team Haem and learn more, email: miriam@haemochromatosis.ie

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

July 27, 2026 No Comments

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

July 27, 2026 No Comments

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

June 2, 2026 No Comments

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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