Alice Kelly raising awareness of Haemochromatosis on Newstalk, ‘The Hard Shoulder’!

Entrenpreneur, baker and Tik Tok sensation Alice Kelly, who has haemochromatosis, has helped the Irish Haemochromatosis Association to raise awareness and funds for the work of the charity. Alice was on Newstalk earlier this year, along with Professor John Ryan and you can listen back on Newstalk’s podcast if you missed the live interview.

Listen to the full interview here: https://www.newstalk.com/…/new-study-shows-the-irish…]

Alice has been an amazing young Ambassador for the Association in educating and raising awareness among her over 1 million Tik Tok subscribers – and sharing videos and reels on her social media accounts of her specially-made Red Velvet Cake with our IHA logo!

Alice is asking all her followers and the haemochromatosis community to spead the word and ask your friends, family or company to consider membership or a donation to support our work.

Donate today to support our work

All funds raised will help support projects for our charity (which is the only registered charity supporting Haemochromatosis patients in Ireland!) such as:

✔️  Raising nationwide awareness so more people get diagnosed early

✔️  Expanding our patient Helpline & family support services

✔️  Nursing education & training to improve treatment access for patients across Ireland

✔️  Patient resources & information campaigns to empower those living with haemochromatosis

You can also ask your company to support our work, maybe even take out a Golf team in our upcoming Golf Classic in the K Club on the 1st May. For more information on how you can enter a corporate team to the Classic email Miriam at miriam@haemochromatosis.ie

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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