Thank you to our VHI Mini Marathon Runners!

Running for Haemochromatosis! Sisters Tara and Niamh Nolan ran the VHI Women’s Mini Marathon in Dublin in memory of their dad, Arthur. Monica Vaughan, IHA volunteer met up with them at the marathon to mark World Haemochromatosis Awareness Week. Together, these great women have raised over €3,000 to support the work of the Irish Haemochromatosis Association. We can’t thank Tara, Niamh and Monica enough for helping to raise vital funds for our work.

Every year, the VHI Women’s Mini Marathon takes place over the June bank holiday and every year we invite as many of our members and volunteers to join us to walk, jog or run the marathon to support the Irish Haemochromatosis Association. If you would like to participate next year, please don’t hesitate to get in touch with us for more information and a volunteer pack, including an IHA tshirt and fundraising support information.

Or if you have ideas for any other marathons or sports activities, please let us know! Email: info@haemochromatosis.ie

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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