NW & Sligo Study Day for Venesection Nurse Training

The Hospital Saturday Fund has provided continued support to us for venesection nurse training and education for GP Practice Nurses, especially in the North West. As part of this funding, we partnered with the Education and Training Programme team in Sligo, Leitrim, Roscommon and Donegal to develop a competency-based curriculum to manage venesection treatment for patients and with the IGPNEA, the Irish Practice Nurses Education Association.

We would like to thank the expert education team in the NW region, including Mairead Murphy, Kathy Taffe, Charlotte Hannon and venesection nurses Akhtar Arif and Margaret Dobbin for their expertise and commitment to integrated and collaborative working to improve haemochromatosis patient care. We worked on a high impact nurse education programme in 2025 and hope to continue to develop community initiatives in the treatment and care of patients, to reduce hospital dependency.

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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