IGPNEA Conference 2025

General Practice Nurses are the backbone of primary care in Ireland – and we were honoured to join the IGPNEA Annual Conference in Portlaoise this year.

With the generous support of the Hospital Saturday Fund, we partnered with IGPNEA to deliver practical venesection training to over 80 nurses – strengthening care for patients nationwide.

Huge thanks to our brilliant nurse trainers Michelle Dannaher and Margaret Lee Dobbin, to Roberta Tuckey for her stand-out organising skills, her great administration skills and stellar support and to the entire committee – especially Sharon Kinsella (National Chairperson) and Rita Pender (Director of Nursing Education) – for their incredible leadership. We would also like to extend a huge thank you to our volunteer Anna McCarthy, who continues to support our patients and attend conferences and events to talk about haemochromatosis and how to improve patient care and treatment.

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

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‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

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World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

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