Free online workshops: ‘Living Well with Chronic Pain’ for patients and caregivers

Whether you are a patient or a caregiver, we are inviting our haemochromatosis community to sign up to FREE online workshops on ‘Living Well with Chronic Pain’. The Association, in partnership with the HSE is delivering these workshops for patients.

The programme aims to help people better manage their health and daily life. The sessions will give participants the skills to co-ordinate all the things needed to manage our health as well as keep active in our lives and relationships. The Living Well programme will support you to develop and enhance the skills that help you to live well with a long term chronic pain condition. Two trained leaders run the workshops. Our first workshop started in March, but due to demand, the HSE our partners have put on a second workshop for patients and their carers, starting on the 22nd April. To register and for contact information, please see Leah Harrington’s details below.

Topics also include:

✨Appropriate exercise for maintaining and improving strength and endurance

✨Balancing activity with rest

✨Tools for overcoming worst-case thinking

✨How our minds affect pain and how we can use our minds to lessen pain

✨Negative emotions

✨Healthy eating

✨Appropriate use of medication

✨Working more effectively with health care providers

✨Communicating with friends and family

✨Communicating with the health care system

✨Communicating with oneself

✨Action-planning, problem-solving, decision-making

You will also learn techniques to deal with symptoms of chronic pain conditions, such as fatigue,sleeplessness, stress, and emotional problems such as depression, anger, fear, and frustration, with emphasis on cognitive behavioural therapy techniques for managing pain.

For more information on how to sign up to these free online workshops:

Contact Leah Harrington, Living Well Coordinator: Registration email: LivingWellDNCC@hse.ie; Leah’s email: leah.harrington@hse.ie. Contact phone: 087 365 4392

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

Read More »

‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

Read More »

World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

Read More »