‘We are Family’ HUK Haemochromatosis Event Belfast
Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield.
New EULAR Classification Criteria for Haemochromatosis Arthropathy
We are delighted to announce important progress for people living with haemochromatosis and joint pain. The European Alliance of Associations for Rheumatology (EULAR) has developed classification criteria for haemochromatosis arthropathy.
New Venesection Treatment Guidelines
A Best Practice guidance was released earlier in the year, ‘Venesection Treatment in Haemochromatosis, Current Best Practice’ from the British Society of Gastroenterology/BASL Special Interest Group by contributors P. Singh, G. Mortimore, J. Cash, J. Shearman, H. Don among others.
New Podcast ‘Haemochromatosis – Let’s Iron it Out’ from Jessica Byrne
Nursing student, Jessica Byrne, has released a new podcast ‘Haemochromatosis – Let’s Iron it Out. Jessica’s aim is to raise awareness of haemochromations.
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Diet & Haemochromatosis Online Event
Register today for a Diet & Haemochromatosis online event with Sarah Keogh, Consultant Nutritionist and Dietician www.eatwell.ie The event takes place on Tuesday, 30th September @ 7pm
Christmas Jumper Cheer!
There is still time to donate to our Christmas Jumper Campaign this year! Miriam is raising funds to support our ongoing work and projects, including our Helpline, information resources and vital research work.
Winter 2021 Newsletter for Members & Supporters
Our Winter 2021 Newsletter for Members & Supporters is out now. You can find all the latest news from our volunteers and members. Thank you to everyone who contributed! Read the latest newsletter online HERE As membership of the Irish Haemochromatosis Association makes us stronger and gives us a collective voice to advocate on behalf of members, we encourage you to […]
Online Information Evening November 2021
Dr. Gerard Crotty, Consultant Haematologist and Nurse Colette Cleary, Midland Regional Hospital, Tullamore will present a free online information event via zoom on haemochromatosis or ‘iron overload’ on Tuesday 30th November at 7pm. For more information email miriam@haemochromatosis.ie or call 087 2853907. Everyone is welcome to attend this free event. Please find a poster for the event here: /shared_media/iha/media/docs/Haemochromatosis_Information_Meeting_Poster.pdf Please […]
Venesection Updates for HH Patients during COVID-19
Good news from the Irish Blood Transfusion Service. Although the IBTS are not accepting first time blood donors at the moment, they are making an exception for people with Haemochromatosis who wish to be donors. Check that you are eligible by calling 1850 731137 or go to www.giveblood .ie HOSPITALS At a national level according to […]