Haemochromatosis Patient Conference, Birmingham 2025
We were delighted to attend the Birmingham Haemochromatosis Conference, supported by the National Institute for Health and Care Research and the Toureen Group. Thank you to Dr Janice Atkins, Kim Hicks RN, Professor Patrick Kiely, Dr Prabhsimran Singh and Dr
Jeremy Shearman for their wonderful presentations.
Irish Haemochromatosis Association represents patients at the European Iron Conference & EFAPH AGM 2025
We were delighted to join other European Haemochromatosis representative patient organisations in Innsbruck, Austria at the end of 2025. Medical experts and speakers in the research and treatment of Haemochromatosis attended the European Iron Club Conference and EFAPH AGM.
Alice Kelly raising awareness of Haemochromatosis on Newstalk, ‘The Hard Shoulder’!
Listen into Newstalk, ‘The Hard Shoulder’ to entrenpreneur, baker and Tik Tok sensation Alice Kelly, who has haemochromatosis, and has helped the Irish Haemochromatosis Association to raise awareness and funds for the work of the charity. Alice, along with Professor John Ryan will be live on Wednesday, 4th February 2026 from 4pm, or you can listen back on Newstalk’s podcast if you miss the live interview.
IGPNEA Conference 2025
General Practice Nurses are the backbone of primary care in Ireland – and we were honoured to join the IGPNEA Annual Conference in Portlaoise this year, where we partnered with the IGPNEA to deliver practical venesection training to over 80 nurses.
New EULAR Classification Criteria for Haemochromatosis Arthropathy
We are delighted to announce important progress for people living with haemochromatosis and joint pain. The European Alliance of Associations for Rheumatology (EULAR) has developed classification criteria for haemochromatosis arthropathy.
New Venesection Treatment Guidelines
A Best Practice guidance was released earlier in the year, ‘Venesection Treatment in Haemochromatosis, Current Best Practice’ from the British Society of Gastroenterology/BASL Special Interest Group by contributors P. Singh, G. Mortimore, J. Cash, J. Shearman, H. Don among others.
Calling all Golf Enthusiasts for Haemochromatosis!
Calling all golf enthusiasts! Do you have a personal connection to haemochromatosis – either as a patient or family member? We are planning a series of regional Golf Classics in 2026 to raise vital funds to support our projects.
Sligo Haemochromatosis Study Day
If you are a GP Practice Nurse in the NW region, and would like to explore the subject of haemochromatosis, sign up for our next training session
New Podcast ‘Haemochromatosis – Let’s Iron it Out’ from Jessica Byrne
Nursing student, Jessica Byrne, has released a new podcast ‘Haemochromatosis – Let’s Iron it Out. Jessica’s aim is to raise awareness of haemochromations.
Diet & Haemochromatosis Online Event
Register today for a Diet & Haemochromatosis online event with Sarah Keogh, Consultant Nutritionist and Dietician www.eatwell.ie The event takes place on Tuesday, 30th September @ 7pm