Calling all Golf Enthusiasts for Haemochromatosis!

Calling all golf enthusiasts!

Do you have a personal connection to haemochromatosis – either as a patient or family member?

We are planning a series of regional Golf Classics in 2026 to raise vital funds to support our nurse training and education programme for haemochromatosis patients – and we’d love your help! We are starting on the 1st May with a golf event in the K Club so watch this space! If you or your company can sponsor a team or the event in any way, we would love to hear from you. Please contact Miriam at miriam@haemochromatosis.ie

We are also putting together a small golf committee of passionate volunteers from across Ireland. If you love golf and want to make a difference, we’d be delighted to hear from you. Please contact Miriam at the email address above.

Together, we can make this a hole-in-one for haemochromatosis awareness!

IHA News and Events

Damian Boylan is Cork’s New Lord Mayor

We would like to extend our sincere congratulations to Damian Boylan, friend, advocate and member of the Irish Haemochromatosis Association, who has just been elected as the new Lord Mayor of Cork! Damian has been an amazing public representative for several years and has made it his mission to raise awareness of haemochromatosis, having been diagnosed himself 23 years ago.

Read More »

‘We are Family’ HUK Haemochromatosis Event Belfast

Haemochromatosis UK are hosting a haemochromatosis in-person event in Belfast on the 7th October 2026. Everyone is welcome to attend. Local, national, and international standard experts will deliver a dedicated programme of talks in the beautiful Titanic Hotel. This conference is relevant to anyone affected across the UK and Ireland – even further afield. 

Read More »

World Haemochromatosis Awareness Week, 1-7th June 2026

World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.

Read More »