World Haemochromatosis Awareness Week, 1-7th June 2026
World Haemochromatosis Awareness Week launches!! This is the most important time of the year, when we urge everyone in Ireland to recognise the symptoms of the nation’s ‘Hidden Condition’, often called the ‘Celtic Gene’. Sister and brother, Emilia and Teddy Eustace joined Alice Kelly, Anna McCarthy and Brian Keegan to launch the week.
Fundraising Golf Classic ‘Iron Games’ for Haemchromatosis
Huge thanks to all our corporate teams, donors, supporters and volunteers who helped make our 2026 fundraising Golf Classic a success.Teams were joined by Niall Quinn former professional footballer, manager, businessman and sports television pundit. David Beggy, Chair of the Irish Haemochromatosis Association, welcomed former Meath players and well-known sports personalities, Colm O’Rourke, Gerry McEntee, Mick and Padraig Lyons, Sean Cahill, former Irish rugby union player, Malcolm O’Kelly and many more.
Free online workshops: ‘Living Well with Chronic Pain’ for patients and caregivers
Whether you are a patient or a caregiver, we are inviting our haemochromatosis community to sign up to FREE online workshops on ‘Living Well with Chronic Pain’. The Association, in partnership with the HSE is delivering these workshops for patients. Two trained leaders run the workshops. The start date is Wednesday, 25th March.
Ground-breaking study: Professor Jim Wilson & fellow researchers have mapped the genetic risk for haemochromatosis across the UK and Ireland
New research funded by Haemochromatosis UK and led by Professor Jim Wilson at University of Edinburgh has mapped genetic hotspots for haemochromatosis across the UK and Ireland. Analysing data from over 10,000 volunteers and large population cohorts, the study found the highest genetic risk in north-west Ireland and the Outer Hebrides.
Diet & Haemochromatosis Online Event
We are hosting our next Diet and Haemochromatosis Online Event on Wednesday 18th May, 2026 at 7pm with Sarah Keogh, Consultant Dietician and Nutritionist. Sarah is a regular interviewee on Newstalk and is founder of her business consultancy, www.eatwell.ie
NW & Sligo Study Day for Venesection Nurse Training
The Hospital Saturday Fund has provided continued support to us for venesection nurse training and education for GP Practice Nurses, especially in the North West. As part of this funding, we partnered with the Education and Training Programme team in Sligo, Leitrim, Roscommon and Donegal to develop a competency-based curriculum to manage venesection treatment for patients
Haemochromatosis Patient Conference, Birmingham 2025
We were delighted to attend the Birmingham Haemochromatosis Conference, supported by the National Institute for Health and Care Research and the Toureen Group. Thank you to Dr Janice Atkins, Kim Hicks RN, Professor Patrick Kiely, Dr Prabhsimran Singh and Dr
Jeremy Shearman for their wonderful presentations.
Irish Haemochromatosis Association represents patients at the European Iron Conference & EFAPH AGM 2025
We were delighted to join other European Haemochromatosis representative patient organisations in Innsbruck, Austria at the end of 2025. Medical experts and speakers in the research and treatment of Haemochromatosis attended the European Iron Club Conference and EFAPH AGM.
Alice Kelly raising awareness of Haemochromatosis on Newstalk, ‘The Hard Shoulder’!
Listen into Newstalk, ‘The Hard Shoulder’ to entrenpreneur, baker and Tik Tok sensation Alice Kelly, who has haemochromatosis, and has helped the Irish Haemochromatosis Association to raise awareness and funds for the work of the charity. Alice, along with Professor John Ryan will be live on Wednesday, 4th February 2026 from 4pm, or you can listen back on Newstalk’s podcast if you miss the live interview.
IGPNEA Conference 2025
General Practice Nurses are the backbone of primary care in Ireland – and we were honoured to join the IGPNEA Annual Conference in Portlaoise this year, where we partnered with the IGPNEA to deliver practical venesection training to over 80 nurses.